Tuesday, November 3, 2015

Crohn's Disease Sucks Big Time!

I was originally thinking this would be a blog about my Crohn's, but so far I have written nothing about that.  Now is the time.  Please don't mind the graphic nature or gross things I may share.

I have been having a few bad weeks.  I started out with what I thought might be a flu-type thing.  I actually vomited.  That hasn't happened in a LONG time.  Then the following week, I had nausea again.  I didn't actually vomit and was better in 1 day this time.  When you are sick like that once, you wonder if it is a bug.  When it happens again, you stop thinking that.  I felt somewhat OK for a week or so.  Then the diarrhea hit.  Along with an anal fissure which is just as painful as can be.  So now I am in the bathroom 2-3 times in the a.m. and 1 time at night.  It is all super watery.  This does not help that fissure.

I am scheduled for my next Remicade in 6 days, so I am trying to hold out until then and see what happens between doses this next time.  If I have to same problems, I guess it is time to see the GI.

What stinks about all this is that I have been doing relatively well on the Remicade. And I had to fight tooth and nail to get the stupid insurance company to pay for me to have it every 6 weeks.  Now that that is resolved, the Remicade may be losing its effectiveness.  I mean, come on!!!  Can I not get a break here?  Why after all this struggle can something just not go smoothly?  I guess that is the life of a Crohnie.  Sometimes it is just plain depressing.